Abstract:
PURPOSE Sub-Saharan Africa bears a disproportionate share of the global burden of HIV-
associated Kaposi’s sarcoma (KS), with high morbidity and mortality rates
influenced by stigma, delayed diagnosis, and limited access to care. This study
examines Peer Navigation, through both personal and clinical perspectives, as a
potential intervention to improve outcomes for those living with KS in western
Kenya.
PATIENTS AND
METHODS
This study centers on the lived experience of one KS survivor who became a Peer
Navigator in western Kenya. The narrative captures his journey from diagnosis
to treatment and the subsequent impact of guiding others through their
healthcare journey as a Peer Navigator.
RESULTS Between October 2021 and July 2024, the Peer Navigator provided support to 77
patients. These interactions led to improvements in patient knowledge, reduced
feelings of social isolation, renewed hope for recovery, and increased confidence
in treatment options.
CONCLUSION Peer Navigation plays a crucial role in improving outcomes for patients living
with HIV- associated KS. By integrating the survivor’s voice, this model of care
delivery provides invaluable emotional and social support, fostering improved
patient-reported outcomes and encouraging treatment adherence, thereby
offering a transformative model for care delivery.
