Peer Navigation for HIV-Associated Kaposi Sarcoma in Kenya: The Power of the Survivor’s Voice

Abstract

PURPOSE Sub-Saharan Africa bears a disproportionate share of the global burden of HIV- associated Kaposi’s sarcoma (KS), with high morbidity and mortality rates influenced by stigma, delayed diagnosis, and limited access to care. This study examines Peer Navigation, through both personal and clinical perspectives, as a potential intervention to improve outcomes for those living with KS in western Kenya. PATIENTS AND METHODS This study centers on the lived experience of one KS survivor who became a Peer Navigator in western Kenya. The narrative captures his journey from diagnosis to treatment and the subsequent impact of guiding others through their healthcare journey as a Peer Navigator. RESULTS Between October 2021 and July 2024, the Peer Navigator provided support to 77 patients. These interactions led to improvements in patient knowledge, reduced feelings of social isolation, renewed hope for recovery, and increased confidence in treatment options. CONCLUSION Peer Navigation plays a crucial role in improving outcomes for patients living with HIV- associated KS. By integrating the survivor’s voice, this model of care delivery provides invaluable emotional and social support, fostering improved patient-reported outcomes and encouraging treatment adherence, thereby offering a transformative model for care delivery.