Abstract:
PURPOSE Sub-SaharanAfricabearsadisproportionate share ofthe global burdenof HIV
associated Kaposi’s sarcoma (KS), with high morbidity and mortality rates
influenced by stigma, delayed diagnosis, and limited access to care. This study
examinesPeerNavigation, throughbothpersonalandclinicalperspectives, asa
potential intervention to improve outcomes for those living with KS in western
Kenya.
PATIENTS AND
METHODS
ThisstudycentersonthelivedexperienceofoneKSsurvivorwhobecameaPeer
Navigator in western Kenya. The narrative captures his journey from diagnosis
to treatment and the subsequent impact of guiding others through their
healthcare journey as a Peer Navigator.
RESULTS BetweenOctober 2021 andJuly 2024, the Peer Navigator provided support to 77
patients. Theseinteractions led toimprovementsinpatientknowledge,reduced
feelings ofsocialisolation,renewedhopeforrecovery,andincreasedconfidence
in treatment options.
CONCLUSION Peer Navigation plays a crucial role in improving outcomes for patients living
with HIV- associated KS. By integrating the survivor’s voice, this model of care
delivery provides invaluable emotional and social support, fostering improved
patient-reported outcomes and encouraging treatment adherence, thereby
offering a transformative model for care delivery.
